Joe Fletcher with his son
Joshua who suffers from DBA (Diamond Blackfan Anaemia). Joe will be running in
the London Marathon to raise money and
awareness for DBA UK.
THE FATHER of four-year-old Moira boy Joshua
Fletcher who suffers from the blood disease Diamond Blackfan
Anaemia will take part in this year's London Marathon in a bid
to raise money for the charity DBA-UK which supports both
children with the illness and their parents..
Joe Fletcher will pound the streets of the
capital on April 22, and hopes to realise a total of �3,000
which the organisation will use to fund research into the
condition. Joshua was diagnosed with the illness when just six
Joe and his wife Julie were told the only
known cure was a bone marrow transplant. They went on to fight a
lengthy battle with the Human Fertilisation and Embryology
Authority to get the go-ahead to undergo IVF treatment to
conceive a baby whose stem cells would be a match for their
Once they obtained permission they conceived
Jody who is 18 months old. Her bone marrow is a perfect match
However since Jody's birth advances in
medicine mean a transplant may not be necessary. Joshua is
currently on a revolutionary new drug 'Exjade' which will
improve his quality of life.
Joe is a keen marathon runner and has raised
money before for the charity by taking part in the Lisburn Half
He now wants to complete the London Marathon
to show his appreciation of the support he and Julie have
received from DBA-UK.
Anyone interested in helping to raise money
is asked to ring Joe on 07980948054.